Ways to Give
The Lymphangiomatosis and Gorham’s Disease Alliance relies on your voluntary, tax deductible contributions to improve the quality of life for those affected by these diseases and support research to improve diagnosis and treatment. Your donations help us to provide patients and their family’s much-needed educational information and help to keep them connected with one another through a worldwide patient network. When you give a gift to the LGDA or host a fundraiser you also are making an important contribution to the effort to raise awareness and support efforts that will lead to a cure.
LGDA volunteers truly make a meaningful difference in the lives of those affected by lymphangiomatosis and Gorham’s disease. Each of our programs depends on the efforts of volunteers, so there is no limit to ways in which you can use your skills and talents to help bring hope and help to these families.
Tell Your Story
Every patient, every family has a story to tell. No two are alike. And by sharing our stories, we help those who are new to our patient community as well as those who are veterans of this battle. You don’t have to be a professional writer to tell your story. Every story about our “Warriors” is written by the patient or a member of their family—usually a parent. These stories help to raise awareness about these diseases and give physicians an insider’s viewpoint of what the journey is like for patients and their families. Each and every one serves to help members of this community.
The more constituents we have contacting legislators, the stronger we become, and the harder we are to ignore. So please join us in our advocacy program. As an advocate, we may ask that you contact your state and federal Congressmen on behalf of the LGD Alliance and inform them about current or prospective legislation that will affect our organization. You can do this through email, letter writing, phone call, or even a personal visit. The more people contacting lawmakers, the better chance those policies in support of LGD Alliance will be passed and our patient’s concerns are met.