Understanding the Science

Clinical Trials

A clinical trial is a research study conducted in people to determine whether a given treatment is safe and effective. Clinical trials are the best way for researchers to find new ways to diagnose, treat, and hopefully someday cure lymphangiomatosis and Gorham’s disease. This page is to provide patients and families with information about and locate clinical trials.

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Medical & Scientific Journal Articles

Forays into the medical literature can be exhilarating, frightening, and downright confusing. Many of the cases reported have less than hopeful outcomes. They also can inspire unparalleled hope. But mostly they offer clues, bit by bit painting a picture of things that seem to be effective and things that ultimately may do more harm than good. This page is here to help you evaluate what you read and gain confidence in your ability to determine what may be relevant to your situation.

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Stethoscope on the red book


Glossary of Medical Terms

Here we have compiled a list of dozens of medical and scientific words you will want to know, from angioma to x-ray.

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