Tracy’s youngest son was diagnosed with lymphangiomatosis in 2004 where her journey began to find a way to help her son. This lead to her discovery of the LGDA and the start of an affiliation to help and support their work. In 2012, she set up the Alfie Milne Lymphangiomatosis Trust, a registered charity in the United Kingdom, to help raise awareness of the disease and to raise much needed funds for research and patient support. Alfie’s Trust has provided financial support to help with the cost of organizing the LGDA’s First International Conference in Science and Medicine on Generalized Lymphatic Anomaly (lymphangiomatosis) & Gorham-Stout Syndrome in June 2013 and the Patient Conference in Dallas in June 2014.
In addition to her role as a member of the LGDA Board of Directors, Tracy is Chair of the board of the Lymphangiomatosis and Gorham’s Disease Alliance – Europe and Patient Support Leader for the European Community. Before her family came along she worked in Administration but now is a full time mum to Lewis and Alfie and wife to Mark.