As a result of the generosity of supporters like yourself this past year, 2016 is poised to be a breakout year for lymphangiomatosis and Gorham’s disease research but we will need your help to make it happen. In May of this year our supporters helped Team LGDA and our research partner, the Lymphatic Malformation Institute (LMI), raise $200
» Read more200 people Run Balmoral to raise money for The Alfie Milne Lymphangiomatosis Trust On April 27, 2013, Mum Tracy, Dad Mark and Big Brother Lewis put their trainers back on to run for Alfie’s Trust.
» Read more5K/Run-Walk Marks the Battle of Young Girl Folks in the community of Orrick, Missouri, got together a few months ago and decided to do something to give support and hope to a young girl in town, Maci Jeffries. Maci is 11 years old and has been struck with Gorham’s disease, a very rare disorder which can seriously affect the musculoskeletal
» Read moreTo add a personal touch to the LGDA Golf Outing Fundraiser for 2013, we are issuing this invitation to Lymphangiomatosis and/or Gorham’s disease patients—Warriors as we call them in the LGD Alliance— to create an item (or items) on their own to be included in the raffle done in conjunction with the Golf Outing. Your contribution may be anything
» Read moreOrganizers of 2nd Annual LGDA Golf Outing: Support ‘humbling’ to help cure 2 of world’s rarest diseases BROWN DEER, Wis. (LGDA News) – The second annual Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) Golf Outing was already deemed a success before the first ball was even put on a tee, but even the organizers never expected this. The outing and
» Read moreBy MARIE GILBERT marieg@herald-mail.com 3:32 p.m. EDT, August 18, 2012* Most days, Alli Rogers is in pain. This is the reality of the young woman’s life as she battles a rare disease — one for which there is no cure. She has been in and out of hospitals, has had three surgeries, with the most recent requiring three blood
» Read moreKEWASKUM, Wis. (LGDA News) – New friendships were forged, thousands of dollars were raised and a world record was broken at the first LGDA Golf Outing Sept. 24. Proceeds totaling about $18,000 went to the Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) for research of these rare and debilitating diseases. Nearly 60 golfers and 50 more dinner attendees enjoyed a fun
» Read moreWhen you become a donor you help to improve the quality of life for those affected by these diseases and support research to improve diagnosis and treatment. Your donations help us to provide patients and their family’s much-needed educational information and help to keep them connected with one another through a worldwide patient network. When you give a gift to
» Read moreKEWASKUM, Wis. (LGDA News) – New friendships were forged, thousands of dollars were raised and a world record was broken at the first LGDA Golf Outing Sept. 24. Proceeds totaling about $18,000 went to the Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) for research of these rare and debilitating diseases. Nearly 60 golfers and 50 more dinner attendees enjoyed a fun
» Read more