On your marks, get set, go . . .
200 people Run Balmoral to raise money for The Alfie Milne Lymphangiomatosis Trust On April 27, 2013, Mum Tracy, Dad Mark and Big Brother Lewis put their trainers back on to run for Alfie’s Trust.
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LGDA Establishes Patient Registry
Will Participate in Global Rare Diseases Patient Registry The Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) is pleased to announce the establishment of the International LGDA Registry for Lymphatic Malformations (LGDA Registry), a major goal of the LGDA since the organization’s founding. The LGDA Registry will be instrumental in accelerating the pace of basic and clinical research for the life-threatening disorders
» Read moreLGDA 5th Anniversary
The Lymphangiomatosis & Gorham’s Disease Alliance is pleased to commemorate the recent 5th-Year milestone of its founding by Jana K. Sheets. Jana had a dream in two parts: one, to build an organization of people who would support one another in their journeys with lymphangiomatosis and Gorham’s disease; and, two, to promote awareness about these diseases, help patients
» Read moreCommunity Event Supports Work of LGDA
5K/Run-Walk Marks the Battle of Young Girl Folks in the community of Orrick, Missouri, got together a few months ago and decided to do something to give support and hope to a young girl in town, Maci Jeffries. Maci is 11 years old and has been struck with Gorham’s disease, a very rare disorder which can seriously affect the musculoskeletal
» Read moreWarrior Craft Project for 2013 Golf Outing
To add a personal touch to the LGDA Golf Outing Fundraiser for 2013, we are issuing this invitation to Lymphangiomatosis and/or Gorham’s disease patients—Warriors as we call them in the LGD Alliance— to create an item (or items) on their own to be included in the raffle done in conjunction with the Golf Outing. Your contribution may be anything
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