Support the Mission

All over the world, Warriors and the people who care about them make great efforts through fundraisers and awareness events to support the LGDA’s mission.

The LGDA depends on patients, their families and friends, and others to host and participate in awareness events and fundraisers to support the work of the LGDA. The core mission of the LGDA is to represent all patients with rare lymphatic anomalies and to focus the attention of clinicians and researchers on developing effective clinical models and research protocols that will improve outcomes for those diagnosed with these conditions.

Read more below to learn more about what the LGDA and its supporters are doing to support the mission and get ideas about how you can, too.


2019 Million Dollar Bike Ride

It's time again for the Million Dollar Bike Ride! Now in its sixth year, this effort from our community has directly funded 10 research projects focused on our rare lymphatic diseases. In addition, the requests for proposals for research have identified other worthy projects that LGDA & LMI have funded ...
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LGDA Comedy Night

The LGDA Wisconsin group is holding its eighth annual fundraiser, this time a professional improv comedy night by ComedySportz Milwaukee. Wisconsin events have raised more than $130,000 for the LGDA so far. For more information or to sign up, visit See the LGDA Wisconsin Facebook page here: Register now for ...
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Birthday Party Raises $5000

On July 29, 2018, the family of Adrian Santos hosted its second party to celebrate his 4th birthday and raise awareness about kaposiform lymphangiomatosis (KLA) and money for the LGDA to support research efforts. Once again, Adrian's great aunt Linda Sutherland organized the event. Activities for the kids included face ...
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2 Fundraisers in Dordrecht, the Netherlands for #LGDAwareness Day 2018

Cruising for Ella One of the fundraising events taking place for #LGDAwareness Day is Cruising for Ella on May 25th. This is a spectaculair experience from the water while watching old steam ships come by. Dinner and drinks included! Register: Live for Ella Three bands from the Netherlands will ...
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#LGDAwareness Day 2018

The LGDA and its worldwide partners, LGDA-Europe and Alfie’s Trust, invite you to participate in the 2nd Worldwide Awareness Day on Sunday, May 26, 2018. May 26 was selected for the awareness date in honor of LGDA Founder Jana Sheets, who was born on that day in 1974. This year ...
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LGDA Represented at Rare Diseases Day 2018

On February 24, 2018, Texas Children's Hospital hosted an event at The Health Museum in Houston, raising awareness for rare diseases in observance of the upcoming Rare Disease Day. The LGDA was one of 35 rare disease advocacy organizations represented at the event. Medical Director of the Vascular Anomaly Center ...
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Want to help but don’t know where to start? Check out the links below for ideas:

View and Print our “Get Involved” Information Sheet

View and Print our International Fundraising Toolkit

Check out a list of awareness/fundraising ideas

Become a Donor

More ways to help
Amazon Smile

When you shop and select the Lymphangiomatosis & Gorham’s Disease Alliance as your preferred charity, Amazon will donate a portion of your eligible purchases to LGDA. You can support the LGDA every time you shop Amazon!

AmazonSmile is a simple and automatic way for you to support the LGDA every time you shop, at no cost to you. When you shop at, you’ll find the exact same low prices, vast selection and convenient shopping experience as, with the added bonus that Amazon will donate a portion of the purchase price to LGDA!

For every Bravelet sold, the LGDA receives a donation. Get one for yourself and anyone you know who is facing a challenge: bracelets, necklaces and earrings, watches and more.

We’d love to see pictures you wearing your Bravelets jewelry! Take a photo of yourself wearing your Bravelets jewelry and send it us at with your name, diagnosis, and location and we will post your photo on our facebook page (