Research News


Rare Lung Diseases Consortium

The recently formed Rare Lung Diseases Consortium (RLDC) is holding a planning meeting in July 2015 to prepare for a national summit of all patient advocate organizations and the specialists in pulmonary science and medicine anticipated for 2016. The RLDC is a unique collaboration among patient organizations, clinical investigators and ...
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Vascular Anomalies Special Interest Group

The Vascular Anomalies Special Interest Group's (SIG) mission is to improve the care of children and young adults with vascular anomalies through multicenter collaborative research. The goals of this special interest group include: current continued education to ASPHO membership in the diagnosis, treatment, and management of patients with vascular anomalies ...
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FDA Grants to Stimulate Rare Disease Research

On September 30, 2014, the U.S. Food and Drug Administration (FDA) announced the awarding of 15 grants totaling more than $19 million that will boost the development of treatments and products for patients with rare diseases. Through its Orphan Products Grants Program, the FDA supports clinical studies on safety and/or ...
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Join the LGDA Registry

When you register a patient in the International LGDA Registry for Lymphatic Malformations you are helping researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham's disease to find a treatment and a cure! ...
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