Professional Resources


 

Patient & Family Conference

With the registration at capacity, more than 110 patients and family members turned out for the very first Lymphangiomatosis & Gorham's Disease Alliance Patient & Family Conference, held in Dallas, Texas, June 14-15, 2014. Attendees, including more than two dozen children, came from Europe, South America, and the United States ...
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Join the LGDA Registry

When you register a patient in the International LGDA Registry for Lymphatic Malformations you are helping researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham's disease to find a treatment and a cure! ...
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Meeting Report

1st International Conference on Generalized Lymphatic Anomaly (lymphangiomatosis) and Gorham-Stout Syndrome The Lymphangiomatosis and Gorham's Disease Alliance (LGDA) and the Lymphatic Malformation Institute (LMI) are pleased to share the publication of the Conference Report on the Proceedings of the First International Conference on Generalized Lymphatic Anomaly (lymphangiomatosis) and Gorham-Stout Syndrome ...
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Diffuse Pulmonary Lymphangiomatosis Clinics

A Partnership with LAM One of the most difficult manifestations of lymphangiomatosis and Gorham’s disease to diagnose and manage is diffuse pulmonary lymphangiomatosis (DPL).  This manifestation involves the lymphatic system throughout the patient’s chest and has numerous clinical presentations.  DPL often is a slowly progressing lung disease that can lead ...
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1st International Conference on Generalized Lymphatic Anomaly and Gorham-Stout Syndrome

The Lymphatic Malformation Institute (LMI) and the Lymphangiomatosis and Gorham’s Disease Alliance (LGDA) are proud to host the 1st International Conference on Generalized Lymphatic Anomaly and Gorham-Stout Syndrome. The meeting will be held at the Hyatt Regency in Bethesda, MD from June 7-8, 2013. The conference will be chaired by Dr ...
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LGDA Establishes Patient Registry

Will Participate in Global Rare Diseases Patient Registry The Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) is pleased to announce the establishment of the International LGDA Registry for Lymphatic Malformations (LGDA Registry), a major goal of the LGDA since the organization’s founding. The LGDA Registry will be instrumental in accelerating the ...
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