Professional Resources


Vascular Anomalies Special Interest Group

The Vascular Anomalies Special Interest Group's (SIG) mission is to improve the care of children and young adults with vascular anomalies through multicenter collaborative research. The goals of this special interest group include: current continued education to ASPHO membership in the diagnosis, treatment, and management of patients with vascular anomalies ...
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ASBMR 2014 Annual Meeting

As a member of the Rare Bone Disease Patient Network (RBDPN), the Lymphangiomatosis & Gorham's Disease Alliance (LGDA), and associate members of the RBDPN, participated in the National Bone Health Alliance/Rare Bone Disease Patient Network Workshop: Mechanistic and Therapeutic Insights into Skeletal Biology Learned from the Study of Rare Bone ...
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Webinar: Pulmonary Complications of Lymphangiomatosis & Gorham’s

Update: If you missed the webinar on August 28, it is available for viewing on the ATS website. August 24 - 30, 2014 For the third consecutive year, Lymphangiomatosis and Gorham's disease are being featured as part of Rare Lung Disease Week at the ATS. The feature of the week ...
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Patient & Family Conference

With the registration at capacity, more than 110 patients and family members turned out for the very first Lymphangiomatosis & Gorham's Disease Alliance Patient & Family Conference, held in Dallas, Texas, June 14-15, 2014. Attendees, including more than two dozen children, came from Europe, South America, and the United States ...
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Join the LGDA Registry

When you register a patient in the International LGDA Registry for Lymphatic Malformations you are helping researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham's disease to find a treatment and a cure! ...
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Meeting Report

1st International Conference on Generalized Lymphatic Anomaly (lymphangiomatosis) and Gorham-Stout Syndrome The Lymphangiomatosis and Gorham's Disease Alliance (LGDA) and the Lymphatic Malformation Institute (LMI) are pleased to share the publication of the Conference Report on the Proceedings of the First International Conference on Generalized Lymphatic Anomaly (lymphangiomatosis) and Gorham-Stout Syndrome ...
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