Join LGDA Patient Matching Program - Lymphangiomatosis & Gorham's Disease Alliance

Facebook
Twitter
YouTube
Instagram
LinkedIn

Search for:

Home
About
Disease Information
Patient Resources
Research Funding & Support
Join the Community
Warriors
- Reaching for a Cure
  - Hansel
  - Ricardo
  - Claire
  - Jack
  - Leyton
  - Alea
  - Scot
  - Hayley
  - Alfie
  - Shelly
  - Hollie
  - Isabelle
  - Grigoris
  - Amber
  - Elizabeth
  - Michael
- Legacies
- Where in the World are the Patients?
Donate
News
Support the Mission

Join LGDA Patient Matching Program

Patient Matching Registration Form

Today's Date
MM slash DD slash YYYY
PLEASE TELL US ABOUT THE PATIENT
Name*
First Last
Date of Birth*
Year
Year
Year
Gender*
- Male
- Female
Address*
Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country
Phone
Email*
What is the patient's diagnosis?*
- Generalized lymphatic anomaly (GLA) / lymphangiomatosis
- Gorham-Stout Disease (GSD)
- Kaposiform lymphangiomatosis (KLA)
- Central conducting lymphatic anomaly (CCLA)
- Other or not sure
What areas of the patient's body are effected? Check all that apply:*
- Chest
- Abdomen
- Bones
- Skin
What symptoms have been experienced? Check all that apply.*
- Pain
- Fluid Collection(s)
- Fracture
- Cough/wheezing/difficulty breathing
- Severe fatigue (patient unable to attend school/work/activities at least once a week)
- slow growth/malnourishment
- Fever not associated with acute illness
- Frequent infection
- Nausea/Vomiting
- Diarrhea
- Rash
- None of the above
What is the name of the patient's main doctor for lymphangiomatosis/Gorham's disease?
What is this doctor's area of specialty?
please select from the drop-down menu
Please enter the name of the clinic/hospital where the patient receives most of his/her care for lymphangiomatosis/Gorham's*

Please include the city and state where this facility is located.
ABOUT THE PERSON COMPLETING THE FORM
Name of person completing form*
First Last
I am the:*
- Patient
- Parent or Legal Guardian with whom the patient resides
- Parent or Guardian with whom the patient does NOT reside
- Spouse of the patient
- other

Raising Awareness

Reach for a Cure

Register a patient in the International LGDA Registry for Lymphatic Malformations. Help researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham's disease to find a treatment and a cure!

COVID-19 and Vaccine FAQs

Newsletter

To have the newsletter delivered directly to your inbox, Sign up here

The Patient & Family Voice

Patient Support

LGDA is here to help you find resources and to provide support to patients and families living with Gorham-Stout disease (GSD) & lymphangiomatosis/generalized lymphatic anomaly (GLA).

Click Here to Email Us

LGD Alliance
19919 Villa Lante Place
Boca Raton, FL 33434
Phone: 1-318-734-8240

LGDA is Rare As One!

From Our YouTube Channel

Partnerships & Affiliations

Select Language »