Join LGDA Patient Matching Program - Lymphangiomatosis & Gorham's Disease Alliance

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Join LGDA Patient Matching Program

Patient Matching Registration Form

Today's Date
MM slash DD slash YYYY
PLEASE TELL US ABOUT THE PATIENT
Name*
First Last
Date of Birth*
Month
Day
Year
Gender*
- Male
- Female
Address*
Street Address Address Line 2 City State / Province / Region ZIP / Postal Code Country
Phone
Email*
What is the patient's diagnosis?*
- Generalized lymphatic anomaly (GLA) / lymphangiomatosis
- Gorham-Stout Disease (GSD)
- Kaposiform lymphangiomatosis (KLA)
- Central conducting lymphatic anomaly (CCLA)
- Other or not sure
What areas of the patient's body are effected? Check all that apply:*
- Chest
- Abdomen
- Bones
- Skin
What symptoms have been experienced? Check all that apply.*
- Pain
- Fluid Collection(s)
- Fracture
- Cough/wheezing/difficulty breathing
- Severe fatigue (patient unable to attend school/work/activities at least once a week)
- slow growth/malnourishment
- Fever not associated with acute illness
- Frequent infection
- Nausea/Vomiting
- Diarrhea
- Rash
- None of the above
What is the name of the patient's main doctor for lymphangiomatosis/Gorham's disease?
What is this doctor's area of specialty?
please select from the drop-down menu
Please enter the name of the clinic/hospital where the patient receives most of his/her care for lymphangiomatosis/Gorham's*

Please include the city and state where this facility is located.
ABOUT THE PERSON COMPLETING THE FORM
Name of person completing form*
First Last
I am the:*
- Patient
- Parent or Legal Guardian with whom the patient resides
- Parent or Guardian with whom the patient does NOT reside
- Spouse of the patient
- other

Raising Awareness

LGDA Names New Executive Director

The Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) has selected Dr. Michael Kelly as its new Executive Director. Dr. Kelly will succeed Jack Kelly, who is retiring at the end of May after nearly 14 years of leading the organization.

Jack Kelly – LGDA Founding President to Retire

After leading the LGDA for all of its nearly 14 years, Jack Kelly is set to retire May 31. In his letter to the community Mr. Kelly wrote that the work of the foundation has been “the most rewarding work of my life.”

Reach for a Cure

Register a patient in the International LGDA Registry for Lymphatic Malformations. Help researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham's disease to find a treatment and a cure!

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The Patient & Family Voice

Patient Support

LGDA is here to help you find resources and to provide support to patients and families living with Gorham-Stout disease (GSD) & lymphangiomatosis/generalized lymphatic anomaly (GLA).

Click Here to Email Us

LGD Alliance
19919 Villa Lante Place
Boca Raton, FL 33434
Phone: 1-318-734-8240

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