For Patients & Families


Rare Lung Disease Week II – View Recorded Webinar

As part of "Rare Lung Disease Week at the ATS" and in conjunction with PAR partner the Lymphangiomtosis & Gorham's Disease Alliance, the ATS PAR presented a live webinar on Wednesday, August 5, 2015. If you were unable to join the webinar, it was recorded and can be viewed by ...
Read More

Warrior Featured in ATS Publication

ATS Patient Voices 3: Their Stories, Their Words, a new ebook release by the American Thoracic Society Public Advisory Roundtable (ATS PAR), features the story of LGDA Warrior Megan Gray's journey with lymphangiomatosis. Megan's story will be familiar to many of those diagnosed with lymphangiomatosis and their families; the LGDA ...
Read More

Webinar: Pulmonary Complications of Lymphangiomatosis & Gorham’s

Update: If you missed the webinar on August 28, it is available for viewing on the ATS website. August 24 - 30, 2014 For the third consecutive year, Lymphangiomatosis and Gorham's disease are being featured as part of Rare Lung Disease Week at the ATS. The feature of the week ...
Read More

Patient & Family Conference

With the registration at capacity, more than 110 patients and family members turned out for the very first Lymphangiomatosis & Gorham's Disease Alliance Patient & Family Conference, held in Dallas, Texas, June 14-15, 2014. Attendees, including more than two dozen children, came from Europe, South America, and the United States ...
Read More

Join the LGDA Registry

When you register a patient in the International LGDA Registry for Lymphatic Malformations you are helping researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham's disease to find a treatment and a cure! ...
Read More

ATS-PAR Meet the Expert – San Diego

If you're in the San Diego area Saturday, May 17, 2014, make plans to stop by the International Conference of the American Thoracic Society and visit with representatives of the Lymphangiomatosis & Gorham's Disease Alliance at its booth on PAR Row. This year’s event will focus on “Living Your Best Life with ...
Read More

Back to Latest News