LGDA Mission


 

Founder’s Award

Dr. Denise Adams, Recipient of the LGDA's Founder’s Award The Lymphangiomatosis & Gorham's Disease Alliance (LGDA) is pleased to announce that it made its 2nd Founder’s Award to Denise Adams, MD, Professor, UC Department of Pediatrics, Fellowship Director, Division of Hematology/Oncology, Medical Director, Comprehensive Hemangioma and Vascular Malformation Clinic, Cincinnati ...
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First Concensus Meeting on Lymphatic Anomalies

Led by the outstanding efforts of two members of the Medical Advisory Council of the LGDA—Denise M. Adams, MD, Medical Director, Hemangioma and Vascular Malformations Clinic at Cincinnati Children’s Hospital, and Steven J. Fishman, MD, Co-Director, Vascular Anomalies Center, Children’s Hospital Boston—the first Consensus Meeting on Lymphatic Anomalies was held ...
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About lymphangiomatosis & Gorham’s disease

Our website is designed to help you learn about lymphangiomatosis and Gorham's disease. We hope you find it easy to navigate and to find the information you are looking for. In this post we've included links to some of the main topics on the web site to help you get ...
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Become A Donor

When you become a donor you help to improve the quality of life for those affected by these diseases and support research to improve diagnosis and treatment. Your donations help us to provide patients and their family’s much-needed educational information and help to keep them connected with one another through ...
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1st Annual Golf Outing

KEWASKUM, Wis. (LGDA News) – New friendships were forged, thousands of dollars were raised and a world record was broken at the first LGDA Golf Outing Sept. 24. Proceeds totaling about $18,000 went to the Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) for research of these rare and debilitating diseases. Nearly ...
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LGDA Joins Rare Bone Disease Patient Network

first posted 12/18/2007 It is a distinct pleasure to announce that The Lymphangiomatosis & Gorham's Disease Alliance has been accepted as a member of the Rare Bone Disease Patient Network (RBDPN), a coalition of rare bone disease organizations, established under the auspices of the U. S. Bone and Joint Decade ...
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