LGDA Mission


Central Florida LGDA Golf Tournament

Event:  Central Florida LGDA Golf TournamentStart:  May 18, 2013 12:00 pmEnd:   May 18, 2013 6:00 pmCost:  $55.00/personOrganizer:  Jessica & Michael GloverUpdated: April 5, 2013Venue: Stoneybrook West Golf ClubAddress:  Google Map 15501 Towne Commons Blvd.,Wintergarden, FL, 34787, United States The first Central Florida Lymphangiomatosis & Gorham’s Disease Alliance Golf Tournament is underway! Proceeds, ...
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LGDA Establishes Patient Registry

Will Participate in Global Rare Diseases Patient Registry The Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) is pleased to announce the establishment of the International LGDA Registry for Lymphatic Malformations (LGDA Registry), a major goal of the LGDA since the organization’s founding. The LGDA Registry will be instrumental in accelerating the ...
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LGDA 5th Anniversary

The Lymphangiomatosis & Gorham's Disease Alliance is pleased to commemorate the recent 5th-Year milestone of its founding by Jana K. Sheets. Jana had a dream in two parts: one, to build an organization of people who would support one another in their journeys with lymphangiomatosis and Gorham's disease; and, two, ...
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Community Event Supports Work of LGDA

5K/Run-Walk Marks the Battle of Young Girl Folks in the community of Orrick, Missouri, got together a few months ago and decided to do something  to give support and hope to a young girl in town,  Maci Jeffries.   Maci is 11 years old and has been struck with Gorham's disease,  ...
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Warrior Craft Project for 2013 Golf Outing

To add a personal touch to the LGDA Golf Outing Fundraiser for 2013, we are issuing this invitation to Lymphangiomatosis and/or Gorham’s disease patients—Warriors as we call them in the LGD Alliance— to create an item (or items) on their own to be included in the raffle done in conjunction ...
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Golf Outing Raises $41,000+

Organizers of 2nd Annual LGDA Golf Outing: Support 'humbling' to help cure 2 of world's rarest diseases BROWN DEER, Wis. (LGDA News) – The second annual Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) Golf Outing was already deemed a success before the first ball was even put on a tee, but ...
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