LGDA Mission


 

Dr. Cameron Trenor Receives Founder’s Award

Cameron C. Trenor, III, MD, Assistant Professor of Pediatrics, Harvard Medical School, and Director of Clinical Research for the Vascular Anomalies Center at Boston Children's Hospital, was presented with the 4th Founder's Award during the 2nd International Conference on Generalized Lymphatic Anomaly (GLA) and Gorham-Stout Disease in Atlanta, Georgia, June ...
Read More

Million Dollar Bike Ride

Donate today to help LGDA raise $20,000 On Saturday, May 9, 2015, Team LGDA will participate in the 2nd Annual Million Dollar Bike Ride in Philadelphia, Pennsylvania, to raise more than $1 million for rare disease research. All funds raised for Team LGDA will be used for a lymphangiomatosis and ...
Read More

Rare Disease Day Event

LGDA President Jack Kelly to speak at Rare Disease Day Event The LGDA and other advocates have joined with the National Organization for Rare Disorders (NORD) to sponsor a Statehouse Event dedicated to educating and informing the public, elected officials, legislative staff and the media: Georgia Rare Disease Day State ...
Read More

Orphan Drug Heroes

World Orphan Drug Congress USA Heroes Wall For 4 years the World Orphan Drug Congress USA has sought inspiration from rare disease patients to continue with the research and discovery for orphan drugs. This year WODC USA asked rare disease patients and advocacy groups who inspires them and selected the ...
Read More

LGDA Intercedes to find help for Child in South America

In early April 2013 the Lymphangiomatosis & Gorham's Disease Alliance (LGDA) was contacted by Dr. Mishy Lesser, a Boston-based educator, seeking assistance for a child in the Amazon jungle region of Ecuador. Dr. Lesser had just received an urgent plea for help from a former student, Ladio Dominguez, who resides in ...
Read More

LGDA @ ATS International Conference

The American Thoracic Society International Conference - Meet the Experts session in Philadelphia on Saturday, May 18, 2013, was a great success for the lymphangiomatosis and Gorham’s disease community. In attendance were 3 patients, 4 parents of patients, 2 spouses of patients, 1 friend of a patient, and 3 physicians ...
Read More

 
Back to Latest News