Scott Allen Inman

February 14, 1971 - January 16, 2009 Scott Allen Inman passed away January 16, 2009, just shy of his 38th birthday. Born February 14, 1971, Scott was hospitalized with pneumonia when he was 18 months old. He required tubes to drain fluid from his chest and remained in the hospital ...
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Brittany Danielle Burford

July 29, 1990 - September 26, 2009 Brittany was diagnosed with diffuse pulmonary and systemic lymphangiomatosis in January of 2007. She was 16 years old. At that time she had been having ever more serious health issues for some 18 months. There had been issues off and on all of ...
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Marcus Veng Petersen

When Marcus became ill and was diagnosed, the Petersen family was bewildered to find that there was no information available in the usual medical channels about their young child's rare disease. They were shocked to learn that there were no specialists. Finding a doctor who had ever treated a patient ...
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Robin Brown

December 28, 1981- February 7, 2007 Robin was strong and from day one we knew she was a fighter. She was born without the right ridge on her hip which they thought was a birth defect. When she was a little over a year they broke her pelvis and moved ...
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Jana K. Sheets

May 26, 1974 - January 6, 2010 Founder, Lymphangiomatosis & Gorham's Disease Alliance I have lymphangiomatosis. I was 6 when I broke my leg while playing with some friends in the neighborhood.  It was an accidental kick and if it had been anyone else’s leg it would not have broken, ...
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