Fundraising News


Community Event Supports Work of LGDA

5K/Run-Walk Marks the Battle of Young Girl Folks in the community of Orrick, Missouri, got together a few months ago and decided to do something  to give support and hope to a young girl in town,  Maci Jeffries.   Maci is 11 years old and has been struck with Gorham's disease,  ...
Read More

Warrior Craft Project for 2013 Golf Outing

To add a personal touch to the LGDA Golf Outing Fundraiser for 2013, we are issuing this invitation to Lymphangiomatosis and/or Gorham’s disease patients—Warriors as we call them in the LGD Alliance— to create an item (or items) on their own to be included in the raffle done in conjunction ...
Read More

Golf Outing Raises $41,000+

Organizers of 2nd Annual LGDA Golf Outing: Support 'humbling' to help cure 2 of world's rarest diseases BROWN DEER, Wis. (LGDA News) – The second annual Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) Golf Outing was already deemed a success before the first ball was even put on a tee, but ...
Read More

Hagerstown Family Shares Story of Daughter’s Battle with Lympangiomatosis

By MARIE GILBERT 3:32 p.m. EDT, August 18, 2012* Most days, Alli Rogers is in pain. This is the reality of the young woman’s life as she battles a rare disease — one for which there is no cure. She has been in and out of hospitals, has had ...
Read More

1st Annual Golf Outing

KEWASKUM, Wis. (LGDA News) – New friendships were forged, thousands of dollars were raised and a world record was broken at the first LGDA Golf Outing Sept. 24. Proceeds totaling about $18,000 went to the Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) for research of these rare and debilitating diseases. Nearly ...
Read More

Illinois Pre-Teens Raise over $3,000 for LGDA

On behalf of the entire community of patients around the world, the LGDA would like to express a GINORMOUS THANK YOU to two young ladies in Illinois who organized a neighborhood fundraising event in support of the Alliance. Madeline’s 9-year old brother Zachary was diagnosed with lymphangiomatosis when he was ...
Read More

Back to Latest News