Finding a Physician


Are you having trouble finding a doctor for yourself or your loved one? Because lymphangiomatosis and Gorham’s disease are vascular anomalies that can affect multiple systems with many variables, the multidisciplinary approach used in Vascular Anomalies Centers (VACs) is often necessary for diagnosis and treatment. Most VACs are located in pediatric hospitals in large metropolitan areas, but some also accept adults and most will review the cases of patients of any age. And there are pediatric doctors who will act as consultants for the primary physicians of adult patients.



The LGD Alliance has compiled a list of physicians and centers around the world that have experience diagnosing and treating patients with different aspects of lymphangiomatosis and Gorham’s disease. Specialties include pediatrics, orthopedics, surgery, pulmonology, hematology, oncology, thoracic surgery, maxillofacial surgery, endocrinology and many others. Please Contact our Patient Support Team; they will be happy to help you locate a physician and/or center experienced with your particular situation.



Disclaimer: The LGD Alliance provides this physician information to families as a resource. It is not intended to engage in the practice of medicine. This directory is not intended as a tool for verifying the credentials, qualifications, or abilities of any physician contained therein. Inclusion in the directory does not imply recommendation or endorsement, nor does omission from the directory imply disapproval. In all cases, the LGD Alliance strongly recommends that you seek the opinion of your personal physician.