Conference News


2016 ASPHO-VA-SIG Fall Meeting

The American Society of Pediatric Hematology-Oncology Vascular Anomalies Special Interest Group (ASPHO-VA-SIG) is composed of physicians and other health care professionals in North America who have interest in vascular anomalies, the large umbrella under which generalized lymphatic anomaly (GLA – previously known as lymphangiomatosis), kaposiform lymphangiomatosis (KLA), and Gorham-Stout disease ...
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2nd International Conference on GLA & GSD

The Lymphangiomatosis and Gorham’s Disease Alliance (LGDA) and the Lymphatic Malformation Institute (LMI) were proud to host the 2nd International Conference on Generalized Lymphatic Anomaly and Gorham-Stout Disease. The conference was held at the W Hotel - Buckhead in Atlanta, GA from June 10-11, 2016. The conference was chaired by Dr ...
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At it's meeting in May 2015, LGDA President Jack Kelly spoke to a group of about 100 participating oncologists in American Society of Pediatric Hematology/Oncology's (ASPHO) Vascular Anomalies Special Interest Group, many of whom treat our patients with lymphangiomatosis and Gorham-Stout disease (GSD). Several of the vascular anomalies foundations were ...
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ASBMR 2014 Annual Meeting

As a member of the Rare Bone Disease Patient Network (RBDPN), the Lymphangiomatosis & Gorham's Disease Alliance (LGDA), and associate members of the RBDPN, participated in the National Bone Health Alliance/Rare Bone Disease Patient Network Workshop: Mechanistic and Therapeutic Insights into Skeletal Biology Learned from the Study of Rare Bone ...
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Patient & Family Conference

With the registration at capacity, more than 110 patients and family members turned out for the very first Lymphangiomatosis & Gorham's Disease Alliance Patient & Family Conference, held in Dallas, Texas, June 14-15, 2014. Attendees, including more than two dozen children, came from Europe, South America, and the United States ...
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ATS-PAR Meet the Expert – San Diego

If you're in the San Diego area Saturday, May 17, 2014, make plans to stop by the International Conference of the American Thoracic Society and visit with representatives of the Lymphangiomatosis & Gorham's Disease Alliance at its booth on PAR Row. This year’s event will focus on “Living Your Best Life with ...
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