The purpose of this page is to help you understand in everyday terms some of the complications that have been reported in the medical literature. Eventually this page will consist of articles written by medical professionals to address these complications and how they affect patients with lymphangiomatosis and Gorham’s disease. But we know you are likely to hear about these issues–some may already have experienced some of these complications–and want more information now, so we have performed internet searches to try to locate information about these complications written in everyday language and provided links to those resources on this page.
Please remember that lymphangiomatosis and Gorham’s disease are not common causes of these problems. Thus, the information available is not likely to mention these conditions or be completely relevant to these conditions. The causes that are mentioned may be worrisome, but also are not likely to apply to your situation. The intent is to help you find answers to your questions in terms most people can understand from what appear to be reliable sources. As always, we encourage you to discuss any concerns you have with your physician. We provide this information to help you learn about possible complications and be armed with information that will help you recognize signs and symptoms of complications that may be subtle in their early stages so you can discuss them with your doctor.