Event: Central Florida LGDA Golf Tournament Start: May 18, 2013 12:00 pm End: May 18, 2013 6:00 pm Cost: $55.00/person Organizer: Jessica & Michael Glover Updated: April 5, 2013 Venue: Stoneybrook West Golf Club Address: Google Map 15501 Towne Commons Blvd.,Wintergarden, FL, 34787, United States The first Central Florida Lymphangiomatosis & Gorham’s Disease Alliance Golf Tournament is underway! Proceeds, donations-in-kind and registration
» Read more5K/Run-Walk Marks the Battle of Young Girl Folks in the community of Orrick, Missouri, got together a few months ago and decided to do something to give support and hope to a young girl in town, Maci Jeffries. Maci is 11 years old and has been struck with Gorham’s disease, a very rare disorder which can seriously affect the musculoskeletal
» Read moreTo add a personal touch to the LGDA Golf Outing Fundraiser for 2013, we are issuing this invitation to Lymphangiomatosis and/or Gorham’s disease patients—Warriors as we call them in the LGD Alliance— to create an item (or items) on their own to be included in the raffle done in conjunction with the Golf Outing. Your contribution may be anything
» Read moreOrganizers of 2nd Annual LGDA Golf Outing: Support ‘humbling’ to help cure 2 of world’s rarest diseases BROWN DEER, Wis. (LGDA News) – The second annual Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) Golf Outing was already deemed a success before the first ball was even put on a tee, but even the organizers never expected this. The outing and
» Read moreBy MARIE GILBERT marieg@herald-mail.com 3:32 p.m. EDT, August 18, 2012* Most days, Alli Rogers is in pain. This is the reality of the young woman’s life as she battles a rare disease — one for which there is no cure. She has been in and out of hospitals, has had three surgeries, with the most recent requiring three blood
» Read moreKEWASKUM, Wis. (LGDA News) – New friendships were forged, thousands of dollars were raised and a world record was broken at the first LGDA Golf Outing Sept. 24. Proceeds totaling about $18,000 went to the Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) for research of these rare and debilitating diseases. Nearly 60 golfers and 50 more dinner attendees enjoyed a fun
» Read moreOn behalf of the entire community of patients around the world, the LGDA would like to express a GINORMOUS THANK YOU to two young ladies in Illinois who organized a neighborhood fundraising event in support of the Alliance. Madeline’s 9-year old brother Zachary was diagnosed with lymphangiomatosis when he was three. Madeline has always been so proud of her brother’s
» Read moreWhen their son Ethan was diagnosed with lymphangiomatosis in October 2009 at age 7 months, Nick and Kelly Moss were devastated. Once the shock wore off, they decided they had to do something to help their son and others living with this disease. On July 24, 2011, Nick set out on a 1500-mile military style walk across the United
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