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ATS-PAR: Meet the Expert – Washington, DC
May 20, 2017 @ 10:00 am - 2:00 pm
Make plans to join us in Washington, DC, Saturday, May 20, 2017, at the International Conference of the American Thoracic Society and visit with representatives of the Lymphangiomatosis & Gorham’s Disease Alliance at its booth on PAR Row. There is no cost to attend and parking will be free. This year’s event will focus on “The Role of Patients in Advancing Treatments and Cures.”
Founded in 2001, ATS PAR consists of 15 member organizations, which represent patients affected by respiratory diseases, sleep-related conditions, or related critical illnesses. The group collaborates with the ATS to advance their shared education, research, patient care, and advocacy missions.
The ATS Public Advisory Roundtable will host its 11th annual Meet-the-Experts patient-family forum during ATS 2017. The event gives patients the opportunity to learn from and speak with leading physicians, researchers, and community organizers.
After presentations from eight physicians, attendees will take part in breakout sessions focusing on a number of lung diseases, during which they will have the opportunity to ask questions and meet with other patients and families attending.
This year, the LGDA’s expert on generalized lymphatic anomaly (lymphangiomatosis) and Gorham-Stout disease will be Dr. Christopher Towe, Director of the Rare Lung Disease Program and an Assistant Professor of Pediatrics in the Division of Pulmonary Medicine at Cincinnati Children’s Hospital in Cincinnati, OH.
Dr. Towe attended medical school at The University of Texas Southwestern Medical Center in Dallas, TX. He completed his Pediatric Residency and his Pediatric Pulmonary Fellowship at St. Louis Children’s Hospital and Washington University in St. Louis before joining the faculty in Cincinnati.
Dr. Towe’s clinical and research interests focus on caring for and improving the clinical outcomes for rare pediatric lung diseases and lung transplant recipients. He completed the largest study to-date correlating clinical pulmonary function studies of bronchiolitis obliterans syndrome to pathologic findings of bronchiolitis obliterans and outcomes following pediatric lung transplant. He is an active member of the Childhood Interstitial Lung Disease Research Network, a national consortium of investigators whose mission is to improve care for children with rare diffuse lung disease through research to improve treatment and create cures, education for families and providers, and advocacy to support children with ChILD. He has active ongoing research projects studying both the computed tomography and magnetic resonance imaging characteristics of multiple rare pediatric lung diseases including generalized lymphatic anomaly (lymphangiomatosis), neuroendocrine cell hyperplasia of infancy, pulmonary fibrosis and bronchiolitis obliterans in both lung transplant and bone marrow transplant patients.