Awareness News


Who’s Who at ATS-PAR

Among the several scientific and medical societies and patient advocacy groups with which LGDA is affiliated is the American Thoracic Society through its Public Advisory Roundtable - Council of Public Representatives. LGDA president Jack Kelly and the LGDA were the subject of a feature article, "Who's Who at ATS PAR," on page 4 of the Mar/Apr ...
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First Concensus Meeting on Lymphatic Anomalies

Led by the outstanding efforts of two members of the Medical Advisory Council of the LGDA—Denise M. Adams, MD, Medical Director, Hemangioma and Vascular Malformations Clinic at Cincinnati Children’s Hospital, and Steven J. Fishman, MD, Co-Director, Vascular Anomalies Center, Children’s Hospital Boston—the first Consensus Meeting on Lymphatic Anomalies was held ...
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Walk for Lymphangiomatosis

When their son Ethan was diagnosed with lymphangiomatosis in October 2009 at age 7 months, Nick and Kelly Moss were devastated. Once the shock wore off, they decided they had to do something to help their son and others living with this disease. On July 24, 2011, Nick set out ...
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The LGD Alliance is a proud CaringBridge Partner. Many members of our community have created a free CaringBridge page to help them keep in touch with friends and family as they deal with the challenges of living with lymphangiomatosis and Gorham's disease. CaringBridge's free websites offer a personal and private ...
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Rare Diseases Day 2011

UNIVERSITY OF FLORIDA COLLEGE OF MEDICINE AT SHANDS HOSPITAL SPONSORS RARE DISEASES DAY EVENT 2/25/2011 The Lymphangiomatosis & Gorham's Disease Alliance (LGDA) and the University of Florida College of Medicine & Shands Hospital, Gainesville, FL, and UF 's Orthopaedic & Sports Medicine Institute, are having an all day exhibit and ...
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LGDA Joins Rare Bone Disease Patient Network

first posted 12/18/2007 It is a distinct pleasure to announce that The Lymphangiomatosis & Gorham's Disease Alliance has been accepted as a member of the Rare Bone Disease Patient Network (RBDPN), a coalition of rare bone disease organizations, established under the auspices of the U. S. Bone and Joint Decade ...
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