How many doctors do you have? Two? Three? Ten? Do you ever wonder if they all talk to each other? If any of them ever communicate with one another? You may be shocked by the answer. A study published in The Archives of Internal Medicine in January 2011 found that 69% of Primary Care Physicians (PCPs)—family doctors and pediatricians—said
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» Read moreOur website is designed to help you learn about lymphangiomatosis and Gorham’s disease. We hope you find it easy to navigate and to find the information you are looking for. In this post we’ve included links to some of the main topics on the web site to help you get started. If there is a topic about which you would
» Read moreWhen you become a donor you help to improve the quality of life for those affected by these diseases and support research to improve diagnosis and treatment. Your donations help us to provide patients and their family’s much-needed educational information and help to keep them connected with one another through a worldwide patient network. When you give a gift to
» Read moreKEWASKUM, Wis. (LGDA News) – New friendships were forged, thousands of dollars were raised and a world record was broken at the first LGDA Golf Outing Sept. 24. Proceeds totaling about $18,000 went to the Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) for research of these rare and debilitating diseases. Nearly 60 golfers and 50 more dinner attendees enjoyed a fun
» Read moreUNIVERSITY OF FLORIDA COLLEGE OF MEDICINE AT SHANDS HOSPITAL SPONSORS RARE DISEASES DAY EVENT 2/25/2011 The Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) and the University of Florida College of Medicine & Shands Hospital, Gainesville, FL, and UF ‘s Orthopaedic & Sports Medicine Institute, are having an all day exhibit and information booth on rare bone diseases, including bone tumors, on
» Read morefirst posted 12/18/2007 It is a distinct pleasure to announce that The Lymphangiomatosis & Gorham’s Disease Alliance has been accepted as a member of the Rare Bone Disease Patient Network (RBDPN), a coalition of rare bone disease organizations, established under the auspices of the U. S. Bone and Joint Decade (USBJD). The USBJD is a global, multi-disciplinary initiative targeting the
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