Ange van der Velden

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In 2012 Ange and her family, husband Marcel and daughters Renee and Ella, moved from the Netherlands to Pittsburgh, PA for an expat assignment. During this assignment Ange’s youngest daughter Ella was diagnosed with Kaposiform lymphangiomatosis in 2013 at the age of 11. After moving back to the Netherlands, Ange co-founded the LGD Alliance Nederland in 2015. She also started to volunteer for the LGD Alliance Europe and became substitute co-chair of the European Patient Advocacy Group for VASCERN, a European Reference Network on Rare Multisystemic Vascular Diseases.

She holds a bachelor degree in Education and a masters degree in Communication. Before moving to Pittsburgh, Ange used to work as communication manager for several profit and non profit organizations. Ella’s disease is unpredictable to the extent it is hard to keep a paid job. Therefore she decided to spend her effort in volunteering and advocating for these diseases. She was part of the organizing committee for the second Patient and Family Conference in 2018 and has been able to support financially to research through fundraising.

She loves to spend her free time on walking her two golden doodles, reading, traveling, swimming and binge-watching a good series on Netflix.