Advocacy News


 

LGDA @ ATS International Conference

The American Thoracic Society International Conference - Meet the Experts session in Philadelphia on Saturday, May 18, 2013, was a great success for the lymphangiomatosis and Gorham’s disease community. In attendance were 3 patients, 4 parents of patients, 2 spouses of patients, 1 friend of a patient, and 3 physicians ...
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1st International Conference on Generalized Lymphatic Anomaly and Gorham-Stout Syndrome

The Lymphatic Malformation Institute (LMI) and the Lymphangiomatosis and Gorham’s Disease Alliance (LGDA) are proud to host the 1st International Conference on Generalized Lymphatic Anomaly and Gorham-Stout Syndrome. The meeting will be held at the Hyatt Regency in Bethesda, MD from June 7-8, 2013. The conference will be chaired by Dr ...
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ATS-PAR Meet the Expert 2013 – Philadelphia

As a member of the American Thoracic Society Public Advisory Roundtable, the Lymphangiomatosis & Gorham's Disease Alliance (LGDA) is pleased to invite you to participate in the Patient-and-Family Forum, Saturday, May 18, 2013, during the International Conference of the American Thoracic Society at the Loews Philadelphia Hotel in Pennsylvania. For the ...
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LGDA Establishes Patient Registry

Will Participate in Global Rare Diseases Patient Registry The Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) is pleased to announce the establishment of the International LGDA Registry for Lymphatic Malformations (LGDA Registry), a major goal of the LGDA since the organization’s founding. The LGDA Registry will be instrumental in accelerating the ...
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National Organization of Vascular Anomalies (NOVA) Bi-annual Conference

Recently the Lymphangiomatosis and Gorham's Disease Alliance (LGDA) accepted an invitation from Karla Hall, Executive Director of NOVA, to attend the bi-annual conference of the National Organization of Vascular Anomalies at Cincinnati Children's Hospital.  The gathering of patients and clinicians affected by a number of vascular/lymphatic disorders was a full ...
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LGDA Joins Rare Bone Disease Patient Network

first posted 12/18/2007 It is a distinct pleasure to announce that The Lymphangiomatosis & Gorham's Disease Alliance has been accepted as a member of the Rare Bone Disease Patient Network (RBDPN), a coalition of rare bone disease organizations, established under the auspices of the U. S. Bone and Joint Decade ...
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