Foundation News

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Up-to-date information on the activities of the Lymphangiomatosis & Gorham’s Disease Alliance, as well as news and events of interest to patients and professionals.

 

 


2015 MDBR Funds 3 Studies

The Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) and the Lymphatic Malformation Institute (LMI) are proud to announce the three projects selected to receive the LGDA-LMI 2015 MDBR Rare Disease Research Grants. The LGDA and LMI joined together Saturday, May 9, 2015, in Philadelphia to participate in the 2nd Annual Million ...
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Give Warriors Hope 2016

As a result of the generosity of supporters like yourself this past year, 2016 is poised to be a breakout year for lymphangiomatosis and Gorham's disease research but we will need your help to make it happen. In May of this year our supporters helped Team LGDA and our research ...
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#GivingWarriorsHope2016

As a result of the generosity of supporters like yourself this past year, 2016 is poised to be a breakout year for lymphangiomatosis and Gorham's disease research but we will need your help to make it happen. In May of this year our supporters helped Team LGDA and our research ...
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Bike Ride Raises $200K for Research

In May 2015, the LGDA and its research partner the Lymphatic Malformation Institute (LMI) participated in the 2nd Annual Million Dollar Bike Ride sponsored by the Penn Medicine Orphan Disease Center (ODC), which promotes the development of therapies across a broad range of orphan diseases, and Rare Disease Cycling, a ...
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Rare Lung Disease Week II – View Recorded Webinar

As part of "Rare Lung Disease Week at the ATS" and in conjunction with PAR partner the Lymphangiomtosis & Gorham's Disease Alliance, the ATS PAR presented a live webinar on Wednesday, August 5, 2015. If you were unable to join the webinar, it was recorded and can be viewed by ...
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Ensuring Access to Clinical Trials (EACT) Act Passes Senate

On July 16, 2015, the Ensuring Access to Clinical Trials Act (EACT), S 139/HR 209, which will permanently remove a barrier to clinical trial participation for those with rare diseases was passed in the United States Senate by unanimous consent. EACT makes permanent the Improving Access to Clinical Trials Act ...
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News and Events by Year
Register NOW for 1st LGDA Patient & Family Conference – June 2014 – See more at: https://www.lgdalliance.org/2013/11/conference2014/#sthash.NpIjHijR.dpuf
Register NOW for 1st LGDA Patient & Family Conference – June 2014 – See more at: https://www.lgdalliance.org/2013/11/conference2014/#sthash.NpIjHijR.dpuf

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1st Edition – Winter 2009