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Up-to-date information on the activities of the Lymphangiomatosis & Gorham’s Disease Alliance, as well as news and events of interest to patients and professionals.

 

 


LGDA Intercedes to find help for Child in South America

In early April 2013 the Lymphangiomatosis & Gorham's Disease Alliance (LGDA) was contacted by Dr. Mishy Lesser, a Boston-based educator, seeking assistance for a child in the Amazon jungle region of Ecuador. Dr. Lesser had just received an urgent plea for help from a former student, Ladio Dominguez, who resides in ...
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LGDA @ ATS International Conference

The American Thoracic Society International Conference - Meet the Experts session in Philadelphia on Saturday, May 18, 2013, was a great success for the lymphangiomatosis and Gorham’s disease community. In attendance were 3 patients, 4 parents of patients, 2 spouses of patients, 1 friend of a patient, and 3 physicians ...
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On your marks, get set, go . . .

200 people Run Balmoral to raise money for The Alfie Milne Lymphangiomatosis Trust   On April 27, 2013, Mum Tracy, Dad Mark and Big Brother Lewis put their trainers back on to run for Alfie’s Trust.  ...
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Diffuse Pulmonary Lymphangiomatosis Clinics

A Partnership with LAM One of the most difficult manifestations of lymphangiomatosis and Gorham’s disease to diagnose and manage is diffuse pulmonary lymphangiomatosis (DPL).  This manifestation involves the lymphatic system throughout the patient’s chest and has numerous clinical presentations.  DPL often is a slowly progressing lung disease that can lead ...
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1st International Conference on Generalized Lymphatic Anomaly and Gorham-Stout Syndrome

The Lymphatic Malformation Institute (LMI) and the Lymphangiomatosis and Gorham’s Disease Alliance (LGDA) are proud to host the 1st International Conference on Generalized Lymphatic Anomaly and Gorham-Stout Syndrome. The meeting will be held at the Hyatt Regency in Bethesda, MD from June 7-8, 2013. The conference will be chaired by Dr ...
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ATS-PAR Meet the Expert 2013 – Philadelphia

As a member of the American Thoracic Society Public Advisory Roundtable, the Lymphangiomatosis & Gorham's Disease Alliance (LGDA) is pleased to invite you to participate in the Patient-and-Family Forum, Saturday, May 18, 2013, during the International Conference of the American Thoracic Society at the Loews Philadelphia Hotel in Pennsylvania. For the ...
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Register NOW for 1st LGDA Patient & Family Conference – June 2014 – See more at: https://www.lgdalliance.org/2013/11/conference2014/#sthash.NpIjHijR.dpuf
Register NOW for 1st LGDA Patient & Family Conference – June 2014 – See more at: https://www.lgdalliance.org/2013/11/conference2014/#sthash.NpIjHijR.dpuf

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