2020 Million Dollar Bike Ride Research Award

The LGDA and the Lymphatic Malformation Institute (LMI), our research partner, are pleased to announce Andrea Del Fattore, PhD, has been awarded $81,965 to fund his project Understanding the effects of Sirolimus/Zolendronic acid treatment on bone remodeling activity in patients with Gorham-Stout disease.

Dr. Del Fattore is the Head of Bone Physiopathology Laboratory at Bambino Gesù Children’s Hospital in Rome. He obtained his Bachelor’s and Master’s degrees in Biotechnology at “Sapienza” University of Rome developing his thesis on bone diseases. He earned his PhD in 2009 at University of L’Aquila (Italy). Dr. Del Fattore takes part in international scientific committees. He has earned several awards and honors, including the ECTS Iain T Boyle Award, a prestigious award for young scientists who have made significant progress and contribution to the field of bone and calcified tissue. The research activity of Dr. Del Fattore is focused on the study of rare bone diseases.

This award was made possible through your generous support of Team LGDA/LMI and the Million Dollar Bike Ride (MDBR), an annual event hosted by the Orphan Disease Center at the University of Pennsylvania. Team LGDA/LMI has raised over $700,000 through the MDBR since 2015 and has now funded 11 research projects directly related to GLA, GSD, KLA, and CCLA.

In 2016, Dr. Del Fattore, his colleague Andrea Bartuli, MD, and their team began a study to help better understand the mechanisms which lead to bone loss in GSD. The results of this important research, which also was funded through the MDBR, were published in 2019 in the journal Bone.

The 2021 Million Dollar Bike Ride is scheduled for Saturday, June 12, 2021. We’re ready to ride again!