Building Our Research Network

The LGDA is very pleased to announce the following new team members:


Photo of Dr. Michael Kelly

Michael Kelly, MD, PhD, a pediatric hematology-oncology specialist with over twenty years’ leadership in the care of children and adults with vascular anomalies, joined the LGDA in June of 2020 as Chief Medical Officer. In this newly created position, Dr. Kelly will provide strategic oversight for foundation collaborative initiatives related to patient care and clinical and translational research engagement. (Dr. Kelly is not related to the LGDA president, Jack Kelly).

Photo of Dr. Kimberley Steele

Kimberley E. Steele, MD, PhD, is joining the LGDA in the newly created position of Director of Patient-Led Research. As our research network program expands, Dr. Steele will work to strengthen and ensure collaboration among and across our three international pillars: our Patient Network, Clinical Care Network, and our Research Network. Dr. Steele and her husband, Dr. Greg Prokopowicz, are parents of a young boy with KLA.

Tracy Milne began her new position as LGDA Programs Assistant in May. Tracy has long been associated with the LGDA as a founder of LGDA-UK and as a parent of a young boy with GLA. Prior to accepting this new role, Tracy served as a member of the LGDA Board of Directors for 3 years, and as Chair of the board of the Lymphangiomatosis and Gorham’s Disease Alliance – Europe.


We are so very excited with the new strength in expertise and commitment to the growth of the LGDA in our pursuit of improving the lives of our patient community.

The LGDA extends tremendous thanks to the Chan Zuckerberg Initiative-Rare As One award received earlier this year, making possible these exciting additions to the foundation.