COVID-19 Questions and Answers for Complex Vascular Anomalies Families

In an effort to address concerns of those living with rare vascular anomalies, several patient advocacy organizations have compiled a list of frequently asked questions from our affected families concerning COVID-19.

The medical advisors from the patient advocacy organizations worked together to prepare responses to these questions.

The vascular anomalies community advocates have jointly collaborated with our medical advisors to develop a FAQ information sheet for COVID-19 information as it relates to our population. Please remember this is for general information purposes only. It is not intended to be a substitute for professional medical advice, diagnosis or treatment.

Always seek the advice of your physician or other health care provider as they are the most familiar with your situation.

It is critical that we all follow the CDC and WHO guidelines concerning COVID-19 in order to slow the spread of this disease. Also follow your state or country recommendations.

COVID-19 information is changing daily. Please consult the pages referenced below for the most current information.

Patient organizations working together for our affected families, on this joint effort, include:

K-T Support Group (thanks to Mellenee Finger for leading this effort for all of us)
Project FAVA
Cloves Syndrome Community
LGD Alliance
National Organization of Vascular Anomalies
Vascular Birthmark Foundation