Rare Disease Week on Capitol Hill

Rare Disease Week on Capitol Hill (February 25 – 28, 2020) brings rare disease community members from across the United States together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators.

We hope to have patients and families from across the country joining LGDA Director of Patient Programs Lisa Klepper in representing the LGDA for events held during this week. The event organizer, EveryLife Foundation, has a limited number of travel stipends available for those needing assistance traveling to Washington, DC.

If you plan to attend, send an email to support@lgdalliance.org to be added to a designated mailing list we will use to communicate with attendees about the events planned for the week.

For more information about the events planned for the week and to apply for travel stipend follow this link: https://rareadvocates.org/rdw/