Orphan Drug Act Resolution Introduced in Congress

Senator Hatch and Representatives Lance and Butterfield introduced a resolution that heralds the success of the Orphan Drug Act (ODA) and calls for continued support of the legislation.

This year marks the 35th anniversary for the ODA. That means 35 years of increased hope and treatments for the rare disease community. Prior to the ODA, there were only 34 therapies indicated to treat a rare disease. Now, there are over 700 and counting!

There’s more work to be done, though. Approximately 95 percent of rare diseases are still without a single treatment approved by the Food and Drug Administration (FDA). Consequently, the ODA must remain strong!

Last year, Congress cut one of the incentives for companies to manufacture orphan drugs contained within the ODA in half. We cannot let that happen again! That’s why we are so excited that Senator Hatch and Representatives Lance and Butterfield have introduced this Resolution. We hope you will join us in asking all members of Congress to become a cosponsor of this Resolution and show their support of the ODA!

For more information on the Resolution, click here. Additionally, for more general information on the ODA, check out NORD’s new one-pager here.

To contact your Senator and Representative, click here to go to the NORD website where you can customize and send an email: Tell Congress to Support the Orphan Drug Act