The Multidisciplinary Team

Presented by Michael Briones, DO, and Rachel Swerdlin, MS, RN, CPNP, Emory University and Children’s Healthcare of Atlanta.

Abstract: Gorham-Stout disease (GSD) is a rare vascular disorder of lymphatic origin characterized by bone destruction with massive osteolysis due to progression of lymphangiomatous tissue while Generalized Lymphatic Anomaly (GLA) is a multisystem disorder that also commonly affects bone and KLA is a subset of GLA with associated coagulopathy and a more aggressive course. Because these disorders can affect multiple organs, there is a need for experienced providers working in the context of a coordinated and structured multidisciplinary team that can treat these complex patients successfully and offer highly specialized care, potential access to leading clinical trials, and a comprehensive multidisciplinary team approach with expert consultation. We will present the development of a multi-disciplinary, in-person vascular anomalies program built for clinical collaboration, prospective data collection, outcomes tracking, and optimizing clinical.


About the Presenters

Michael Briones, DO

Medical Director Scottish Rite Campus
Associate Professor of Pediatrics
Aflac Cancer and Blood Disorders Center
Emory University School of Medicine

 

 

 

 

Rachel Swerdlin, MS, RN, CPNP

Pediatric Nurse Practitioner
Vascular Anomalies Clinic Coordinator
Children’s Healthcare of Atlanta

 

 

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