LGDA Represented at Rare Diseases Day 2018

On February 24, 2018, Texas Children’s Hospital hosted an event at The Health Museum in Houston, raising awareness for rare diseases in observance of the upcoming Rare Disease Day.

The LGDA was one of 35 rare disease advocacy organizations represented at the event.

Medical Director of the Vascular Anomaly Center at TCH, Dr Ionela Iacobas, hosted the exhibit for vascular anomalies and provided information about the LGDA’s support and research programs during the event.

Dr. Ionela Iacobas, Medical Director of the Vascular Anomalies Center at Texas Children’s Hospital (left) with a TCH volunteer at the VAC display.