#LGDAwareness Day 2017

In May 2017, the LGDA and its counterparts in the UK and Europe conducted a weeklong campaign dedicated to raising awareness about GLA/lymphangiomatosis, Gorham-Stout disease, and KLA, which concluded with the very first #LGDAwareness Day on May 26, 2017.

The theme for the week was “5 Words on Being Rare.” We asked patients, their families, and volunteers to select 5 words that describe their experiences with these rare diseases and send us their reasons for choosing them. Throughout the week we published graphics made from content they submitted through our social media platforms to spread the message of what it is like to be rare.

These are some of the graphics that were shared through the week: