Supporting the Mission

All over the world, Warriors and the people who care about them make great efforts through fundraisers and awareness events to support the LGDA’s mission.

Generalized lymphatic anomaly (GLA, also known as lymphangiomatosis), kaposiform lymphangiomatosis, Gorham-Stout disease (GSD), central conducting lymphatic anomaly (CCLA), and the other rare lymphatic anomalies are truly orphan diseases. Unlike some more common diseases of the lymphatic system there is no government funding or university endowed research into our orphan diseases; no pharmaceutical company is working to develop a new drug specific to these conditions. In general, fundraisers conducted for and individual donations made to hospitals where patients receive care go to the general operating fund for the hospital, not to research into specific conditions.

The LGDA depends on patients, their families and friends, and others to host and participate in awareness events and fundraisers to support the work of the LGDA. The core mission of the LGDA is to represent all patients with rare lymphatic anomalies and to focus the attention of clinicians and researchers on developing effective clinical models and research protocols that will improve outcomes for those diagnosed with these conditions.

Follow the links below to learn more about what Warriors are doing to support the mission and get ideas about how you can, too.


Birthday Party for Ohio 3-year-old Raises Over $3300 for LGDA

NY 10-year-old’s School Project Yields Over $800 for Research

T-shirt sale by Florida 10-year-old Sends $500 to Research

#LGDAwarenessDay Event in the Netherlands Raises 1000 Euros

Kiltwalk in Scotland raises £4,000


Want to help but don’t know where to start?  Check out the links below for ideas:

View our International Fundraising Toolkit

Check out a list of awareness/fundraising ideas

Become a Donor


More ways to help

AmazonSmile – When you shop at smile.amazon.com and select the Lymphangiomatosis and Gorham’s Disease Alliance as your charity, Amazon will make a donation to the LGDA for every eligible purchase.

Be Brave! For every Bravelet sold, the LGDA receives a donation. Bracelets, necklaces and earrings, even watches and scarves. Get one for yourself and anyone you know who is facing a challenge.