2016 News

2 Grants Available for GLA/GSD Research

The Orphan Disease Center (ODC) at the University of Pennsylvania invites researchers to participate in the 2017 Million Dollar Bike Ride Pilot Grant Program.  The program is now open and offering 33 different research grant opportunities focusing on 23 different rare diseases.   This program provides a one‐year grant to ...
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2016 MDBR Funds 2 New Studies

The Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) and the Lymphatic Malformation Institute (LMI) are proud to announce the two projects selected to receive the LGDA-LMI 2016 MDBR Rare Disease Research Grants. The LGDA and LMI joined together Saturday, May 7, 2016, in Philadelphia to participate in the 3nd Annual Million ...
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2016 ASPHO-VA-SIG Fall Meeting

The American Society of Pediatric Hematology-Oncology Vascular Anomalies Special Interest Group (ASPHO-VA-SIG) is composed of physicians and other health care professionals in North America who have interest in vascular anomalies, the large umbrella under which generalized lymphatic anomaly (GLA – previously known as lymphangiomatosis), kaposiform lymphangiomatosis (KLA), and Gorham-Stout disease ...
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Golf Outing Tops $100,000 Mark

By Scot Wiesner & Beth, Ryan and Claire Mantey After 5 years of being a part of the LGD Alliance Golf Outing in Wisconsin as an organizer and enjoying the camaraderie of everything it has become, we are proud to say that we are well over $100,000 in funds raised ...
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Dr. Cameron Trenor Receives Founder’s Award

Cameron C. Trenor, III, MD, Assistant Professor of Pediatrics, Harvard Medical School, and Director of Clinical Research for the Vascular Anomalies Center at Boston Children's Hospital, was presented with the 4th Founder's Award during the 2nd International Conference on Generalized Lymphatic Anomaly (GLA) and Gorham-Stout Disease in Atlanta, Georgia, June ...
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Rare Lung Diseases Week 2016

In 2016, the ATS Public Advisory Roundtable (PAR) continues its successful program “Rare Lung Disease Week at the ATS,” which represents a society-wide initiative to recognize the many rare lung disorders for which ATS PAR member organizations provide support and guidance to patients and their families. The week of July ...
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