Give Warriors Hope 2016

iStock_000005908146XSmallAs a result of the generosity of supporters like yourself this past year, 2016 is poised to be a breakout year for lymphangiomatosis and Gorham’s disease research but we will need your help to make it happen.


In May of this year our supporters helped Team LGDA and our research partner, the Lymphatic Malformation Institute (LMI), raise $200 thousand in direct donations and matching funds for research in the Million Dollar Bike Ride. Seven investigators submitted applications for funding for valuable research projects aimed at improving diagnostic testing, identifying and studying bone cell defects, developing clinical practice guidelines, and identifying biomarkers that could help in assessing disease status and response to various drugs.


To fund all the projects the LGDA/LMI research committee desires to fund for 2016 we need your help to raise an additional $350,000.00


The research funded by the LGDA and LMI is for the benefit of all those suffering with lymphangiomatosis and Gorham’s disease all over the world. Our community is too small, our diseases too rare to have access to the kind of funding that is made readily available for research into more common diseases like cancer and heart disease. So we – the patients, the families, and those who love and care for us – have to commit ourselves to raising the money required to support the research that has to be done. We have to do it ourselves.


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