Rare Lung Diseases Consortium
The recently formed Rare Lung Diseases Consortium (RLDC) is holding a planning meeting in July 2015 to prepare for a national summit of all patient advocate organizations and the specialists in pulmonary science and medicine anticipated for 2016.
The RLDC is a unique collaboration among patient organizations, clinical investigators and the National Institutes of Health working together to accelerate clinical research and improve madical care for people with rare lung diseases. As a member of the RLDC, Jack Kelly, LGDA President & Board Member, will represent the LGDA at the planning meeting. We expect to name a specialist who will be representing the foundation at the meeting as well.