Million Dollar Bike Ride
On Saturday, May 9, 2015, Team LGDA will participate in the 2nd Annual Million Dollar Bike Ride in Philadelphia, Pennsylvania, to raise more than $1 million for rare disease research.
All funds raised for Team LGDA will be used for a lymphangiomatosis and Gorham’s disease research project chosen by the LGDA. Once Team LGDA raises $20,000.00, donations will be matched dollar-for-dollar (up to $50,000.00) through the generous support of private donors identified by the sponsors.
Supporters do not have to ride during the event. Support for Team LGDA can come from anywhere in the world in the form of donations. To donate, and for more information about the event, including rider registration and volunteer opportunities, see the Team LGDA donate page.
This event is sponsored by Penn Medicine Orphan Disease Center (ODC), which promotes the development of therapies across a broad range of orphan diseases, in partnership with Rare Disease Cycling, a national non-profit cycling team whose members race and ride to raise awareness of orphan diseases.
Following the event, a Request for Applications (RFA)* will be broadly distributed to the international scientific community requesting pilot grant applications to improve knowledge about lymphangiomatosis and Gorham’s disease. The ODC is securing philanthropic and corporate donations that will be used to match dollar‐for‐dollar money raised by the cycling participants. Working with the LGDA, scientific leadership of the ODC and its extramural advisors will review the applications and make awards to those of the highest scientific merit which address the specific topics outlined in the RFA for lymphangiomatosis and Gorham’s disease.
*RFA – A type of solicitation notice in which an organization announces that grant funding is available, what type of programs are eligible, what the expectations are, and how applications are submitted and reviewed.