ASBMR 2014 Annual Meeting

As a member of the Rare Bone Disease Patient Network (RBDPN), the Lymphangiomatosis & Gorham’s Disease Alliance (LGDA), and associate members of the RBDPN, participated in the National Bone Health Alliance/Rare Bone Disease Patient Network Workshop: Mechanistic and Therapeutic Insights into Skeletal Biology Learned from the Study of Rare Bone Diseases on September 11, 2014, in Houston, Texas. 

Coordinated by the National Bone Health Alliance (NBHA) in partnership with the Rare Bone Disease Patient Network and with the support of the American Society for Bone and Mineral Research (ASBMR) and the United States Bone and Joint Initiative (USBJI),  the one-day workshop included lectures by invited speakers, including LGDA Medical Advisory Council member Dr. Denise Adams, and multiple opportunities to initiate collaborations and encourage future research partnerships.

RBDN Workshop 2014 Agenda

RBDN Workshop Meeting Report