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Join the LGDA Registry

June 23, 2014 Admin Community News & Events, Latest News, Patient & Family Resources, Professional Resources, Research News, Uncategorized

When you register a patient in the International LGDA Registry for Lymphatic Malformations you are helping researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham’s disease to find a treatment and a cure!

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Raising Awareness

Twenty years of never knowing another person with my disease inspired me to help others. Jana Sheets, LGDA Founder, USA

Patient Support

LGDA is here to help you find resources and to provide support to patients and families living with Gorham-Stout disease (GSD) & lymphangiomatosis/generalized lymphatic anomaly (GLA).

Click Here to Email Us

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