Logo
Donate Button copy
  • Facebook
  • Twitter
  • YouTube
  • Instagram
  • LinkedIn
  • Home
  • About
    • Our Mission & Goals
    • Board of Directors & Staff
    • Medical Advisory Council
    • Web Site Policies
    • Contact Us
  • Disease Information
    • What is lymphangiomatosis?
    • What is Gorham’s Disease?
    • Disease Classification
    • The Lymphatic System
      • More about the lymphatic system:
      • The Spleen
    • Bone Biology
    • Reported Complications
    • Medication Information
    • Nutrition and Chylous Effusions
    • Publications & Conference Reports
  • Patient Resources
    • Patient Support Services
      • LGDA Patient Matching Program
    • International LGDA Patient Registry
    • Finding a Physician
    • Understanding the Science
      • Clinical Trials
      • Medical & Scientific Journal Articles
    • Resources for Families
    • Glossary of Medical Terms
  • Research Funding & Support
    • International LGDA Patient Registry
    • Research Partners & Initiatives
    • Publications & Conference Reports
    • Research Grants
  • Join the Community
    • Volunteer
    • Sign up for Newsletter
    • Become an Advocate
    • Online Support
  • Warriors
    • Reaching for a Cure
      • Hansel
      • Ricardo
      • Claire
      • Jack
      • Leyton
      • Alea
      • Scot
      • Hayley
      • Alfie
      • Shelly
      • Hollie
      • Isabelle
      • Grigoris
      • Amber
      • Elizabeth
      • Michael
    • Legacies
      • Jana K. Sheets
      • Marcus Veng Petersen
      • Brittany Danielle Burford
      • Robin Brown
      • Scott Allen Inman
      • Melanie Rose Chaite
      • Joshua Avis
    • Where in the World are the Patients?
  • Donate
    • How Your Donations Help
    • Donate with Credit Card
    • Donate by Check
  • News
  • Support the Mission
    • Ways to Give
    • Fundraising Toolkit
    • A to Z Fundraising Ideas
    • More Ways to Give
    • Get Involved

Join the LGDA Registry

June 23, 2014 Admin Community News & Events, Latest News, Patient & Family Resources, Professional Resources, Research News, Uncategorized

When you register a patient in the International LGDA Registry for Lymphatic Malformations you are helping researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham’s disease to find a treatment and a cure!

iStock_000017157664XSmall

Raising Awareness

Reach for a Cure

Register a patient in the International LGDA Registry for Lymphatic Malformations. Help researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham's disease to find a treatment and a cure!

iStock_000017157664XSmall

 
 

COVID-19 and Vaccine FAQs

Newsletter

To have the newsletter delivered directly to your inbox, Sign up here

The Patient & Family Voice

Patient Support

LGDA is here to help you find resources and to provide support to patients and families living with Gorham-Stout disease (GSD) & lymphangiomatosis/generalized lymphatic anomaly (GLA).

Click Here to Email Us


LGD Alliance
19919 Villa Lante Place
Boca Raton, FL 33434
Phone: 1-318-734-8240

LGDA is Rare As One!

From Our YouTube Channel

https://youtu.be/rvWh2Trs-P4
https://www.youtube.com/watch?v=FklhCMYZF2c
https://www.youtube.com/watch?v=bQbPMSAU7jI&t=0s&list=PLuYdqt19Qeefb6xaxAUzsN7K-Bb-xLiEZ&index=2

Partnerships & Affiliations

Select Language »