Logo
Donate Button copy
  • Facebook
  • Twitter
  • YouTube
  • Instagram
  • LinkedIn
  • Home
  • About
    • Our Mission & Goals
    • Board of Directors & Staff
    • Medical Scientific Advisory Committee
    • Web Site Policies
    • Contact Us
  • Disease Information
    • What is lymphangiomatosis?
    • What is Gorham’s Disease?
    • Disease Classification
    • The Lymphatic System
      • More about the lymphatic system:
      • The Spleen
    • Bone Biology
    • Reported Complications
    • Medication Information
    • Nutrition and Chylous Effusions
    • Publications & Conference Reports
  • Patient Resources
    • Patient Support Services
      • LGDA Patient Matching Program
    • International LGDA Patient Registry
    • Finding a Physician
    • Understanding the Science
      • Clinical Trials
      • Medical & Scientific Journal Articles
    • Resources for Families
    • Glossary of Medical Terms
  • Research Funding & Support
    • International LGDA Patient Registry
    • Research Partners & Initiatives
    • Publications & Conference Reports
    • Research Grants
  • Join the Community
    • Volunteer
    • Sign up for Newsletter
    • Become an Advocate
    • Online Support
  • Warriors
    • Reaching for a Cure
      • Hansel
      • Ricardo
      • Claire
      • Jack
      • Leyton
      • Alea
      • Scot
      • Hayley
      • Alfie
      • Shelly
      • Hollie
      • Isabelle
      • Grigoris
      • Amber
      • Elizabeth
      • Michael
    • Legacies
      • Jana K. Sheets
      • Marcus Veng Petersen
      • Brittany Danielle Burford
      • Robin Brown
      • Scott Allen Inman
      • Melanie Rose Chaite
      • Joshua Avis
    • Where in the World are the Patients?
  • Donate
    • How Your Donations Help
    • Donate with Credit Card
    • Donate by Check
  • News
  • Support the Mission
    • Ways to Give
    • Fundraising Toolkit
    • A to Z Fundraising Ideas
    • More Ways to Give
    • Get Involved

Join the LGDA Registry

June 23, 2014 Admin Community News & Events, Latest News, Patient & Family Resources, Professional Resources, Research News, Uncategorized

When you register a patient in the International LGDA Registry for Lymphatic Malformations you are helping researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham’s disease to find a treatment and a cure!

iStock_000017157664XSmall

Raising Awareness

Twenty years of never knowing another person with my disease inspired me to help others. Jana Sheets, LGDA Founder, USA

Patient Support

LGDA is here to help you find resources and to provide support to patients and families living with Gorham-Stout disease (GSD) & lymphangiomatosis/generalized lymphatic anomaly (GLA).

Click Here to Email Us

Partnerships & Affiliations

Select Language »