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Join the LGDA Registry

June 23, 2014 Admin Community News & Events, Latest News, Patient & Family Resources, Professional Resources, Research News, Uncategorized

When you register a patient in the International LGDA Registry for Lymphatic Malformations you are helping researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham’s disease to find a treatment and a cure!

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Raising Awareness

LGDA Names New Executive Director

Photo of Dr. Michael KellyThe Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) has selected Dr. Michael Kelly as its new Executive Director. Dr. Kelly will succeed Jack Kelly, who is retiring at the end of May after nearly 14 years of leading the organization.

Jack Kelly – LGDA Founding President to Retire

After leading the LGDA for all of its nearly 14 years, Jack Kelly is set to retire May 31. In his letter to the community Mr. Kelly wrote that the work of the foundation has been “the most rewarding work of my life.”

Reach for a Cure

Register a patient in the International LGDA Registry for Lymphatic Malformations. Help researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham's disease to find a treatment and a cure!

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LGDA is here to help you find resources and to provide support to patients and families living with Gorham-Stout disease (GSD) & lymphangiomatosis/generalized lymphatic anomaly (GLA).

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