ATS-PAR Meet the Expert – San Diego

If you’re in the San Diego area Saturday, May 17, 2014, make plans to stop by the International Conference of the American Thoracic Society and visit with representatives of the Lymphangiomatosis & Gorham’s Disease Alliance at its booth on PAR Row. This year’s event will focus on “Living Your Best Life with Lung Disease” and will be from 10 a.m. to 2 p.m. at the Manchester Grand Hyatt Hotel, Grand Hall A-D (Lobby Level), 1 Market Place.

Founded in 2001, ATS PAR consists of 15 member organizations, which represent patients affected by respiratory diseases, sleep-related conditions, or related critical illnesses. The group collaborates with the ATS to advance their shared education, research, patient care, and advocacy missions.

The ATS Public Advisory Roundtable will host its eighth annual Meet-the-Experts patient-family forum during ATS 2014. The event gives patients the opportunity to learn from and speak with leading physicians, researchers, and community organizers.

After presentations from eight physicians, attendees will take part in breakout sessions focusing on pulmonary hypertension, sarcoidosis, lung transplantation, pulmonary fibrosis, Hermansky-Pudlak Syndrome, sleep disorders, and scleroderma.

At its information booth this year, the Lymphangiomatosis & Gorham’s Disease Alliance will feature information about its new International Lymphatic Malformation Patient Registry and its biobank in Booth 4038. The registry was developed in conjunction with the NIH/NCATS/Office of Rare Disease Research. Also learn about a clinical trial and a recently formed partnership with the LAM Foundation to use the LAM Clinical Network, which includes 28 U.S. clinical sites and 11 international sites for the organization’s adult patient community.


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