ATS Hill Day
LGDA Participates in ATS Hill Day 2014
In late March, ATS officers and patient representatives of the Public Advisory Roundtable (PAR), of which the Lymphangiomatosis & Gorham’s Disease Alliance is a member, visited Washington, D.C., to advocate for respiratory health as part of ATS Hill Day 2014.
Events like the ATS Hill Day provide important opportunities for rare disease advocates such as LGDA to meet with lawmakers and policymakers on Capitol Hill. Each time members of the LGDA Board of Directors or patient community participate in advocacy events like ATS Hill Day we are afforded the opportunity to meet with members of Congress and share with them important information about the impact of lymphangiomatosis and Gorham’s disease have on our community. These meetings are very important for us to meet our representatives in Congress and discuss with them ways in which legislative and oversight efforts can benefit members of our patient community as well as the rare disease community at large.