ATS-PAR Meet the Expert 2013 – Philadelphia


ATS LogoAs a member of the American Thoracic Society Public Advisory Roundtable, the Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) is pleased to invite you to participate in the Patient-and-Family Forum, Saturday, May 18, 2013, during the International Conference of the American Thoracic Society at the Loews Philadelphia Hotel in Pennsylvania.

For the second time lymphangiomatosis and Gorham’s disease will be featured at the Forum. During the morning session, “Meet the Expert,” Debra Boyer, MD, will meet with patients/families to discuss the latest in research, clinical trials, and clinical care of patients of all ages with lymphangiomatosis and Gorham’s disease. Dr. Boyer is an Assistant Professor of Pediatrics at Harvard Medical School and a member of the Children’s Hospital Boston Vascular Anomalies Center. We are grateful to Dr. Boyer for giving her time to meet with patients and families during this conference.

There is no charge for patients and their families to attend the Forum, but reservations are required. Complimentary parking and lunch will be provided. There will also be an oxygen refill station for those attendees with Portable Oxygen Concentrators (POCs).  If you would like to attend, please send an email with the names of those planning to attend to no later than Monday April 29, 2013. 

In addition to the Patient-Family Forum, the LGDA will be hosting an information and display booth (#1225). Jack Kelly, president of the LGDA,  will be hosting the booth, sharing information about lymphangiomatosis and Gorham’s disease and the LGDA with conference attendees from all over the world–13,000 people from 95 countries attended last year’s Conference!

The ATS International Conference is one of the largest gatherings of pulmonary, critical care and sleep clinicians and researchers in the world. As a member of the ATS Public Advisory Roundtable, the LGDA is pleased to participate in this Conference each year in order to bring attention to lymphangiomatosis and Gorham’s disease. One of the most serious manifestations of lymphangiomatosis and Gorham’s disease is lung involvement and because of the LGDA’s membership in the ATS-PAR pulmonologists from around the world are learning about these diseases and how they effect the lungs.

We hope you will be able to join us this year for the Patient and Family Forum. We’ll see you there!

So once again, to register for the Meet the Expert session, send an email to no later than Monday April 29, 2013.  We look forward to seeing you there.