National Organization of Vascular Anomalies (NOVA) Bi-annual Conference

Recently the Lymphangiomatosis and Gorham’s Disease Alliance (LGDA) accepted an invitation from Karla Hall, Executive Director of NOVA, to attend the bi-annual conference of the National Organization of Vascular Anomalies at Cincinnati Children’s Hospital.  The gathering of patients and clinicians affected by a number of vascular/lymphatic disorders was a full day of presentations by specialists in treating and studying disorders such as lymphangiomatosis and Gorham’s disease.  Indeed, a number of the doctors there are well-known to many of our patients.  The physician-host of the conference was Denise Adams, MD, Medical Director of the Hemangioma and Vascular Malformations Center at Cincinnati Children’s Hospital. Other presenters were Steven Fishman, MD, Co-Director of the Vascular Anomalies Center (VAC) at Boston Children’s Hospital, and Patricia Burrows, MD, Professor and Head of the Interventional Radiology Unit in the Vascular Anomalies Center at Children’s Hospital of Wisconsin.  Dr. Burrows is immediate past president of the International Society for the Study of Vascular Anomalies (ISSVA).  During the course of the conference we met face-to-face with several clinicians and researchers.  One of those meetings has culminated in the proposal of a research project.  We thank Karla Hall and NOVA for extending us the opportunity to attend the conference.