Community Event Supports Work of LGDA

5K/Run-Walk Marks the Battle of Young Girl

Folks in the community of Orrick, Missouri, got together a few months ago and decided to do something  to give support and hope to a young girl in town,  Maci Jeffries.   Maci is 11 years old and has been struck with Gorham’s disease,  a very rare disorder which can seriously affect the musculoskeletal system for which there is no standard treatment or cure.

The neighbors and town-folk wanted to show the Jeffries family that they deeply care and are supportive of Maci in her struggle with the disease.  “She’s doing real well,”  says her dad. “She’s back in school!”

Sally Vick, an organizer of the event, presented the Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) with two checks totaling $7,341.55.  This outstanding contribution is much needed to support the work of the LGDA in increasing the understanding of the disease by patients, clinicians, other medical professionals, and researchers – including an international conference of specialists in science and medicine and a patient conference.

On behalf of the worldwide community of patients, the LGDA sends our best wishes to Maci for continued progress and her improved health.  And, to Sally Vick, the Orrick Lions Club, Gale Claypole, the Orrick Volunteer Firemen’s Association, and every participant, donor, and supporter of the event we extend our deep gratitude.   We are so fortunate to have so many friends of the LGDA in Orrick, MO.