Golf Outing Raises $41,000+

Organizers of 2nd Annual LGDA Golf Outing: Support ‘humbling’ to help cure 2 of world’s rarest diseases


DSC_063501BROWN DEER, Wis. (LGDA News) – The second annual Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) Golf Outing was already deemed a success before the first ball was even put on a tee, but even the organizers never expected this.

The outing and dinner auction raised more than $41,000 toward research of treatment and a cure for two of the world’s rarest and deadliest diseases. That’s nearly double what the inaugural event raised last year.

“The support is nothing short of humbling,” said Scot Wiesner, Chairman of the LGDA Board of Directors and Golf Outing Co-chair and Co-founder. “We’re that much closer to a cure. It won’t happen overnight, but the ball is rolling. Progress is being made.”

Expectations for the event were astronomically exceeded once again. The outing in two years has raised more than $60,000 for the LGDA.

“We didn’t know exactly what to expect. We figured we’d start an outing and maybe get up to 50 golfers and raise a few thousand dollars,” said Wiesner. “We ended up attracting people from across the country who are impacted by the diseases and whose support has been astounding.”

That support gives hope for a 3-year-old to live a normal life. Patients and their families who never met can support each other through the hard times. The medical community has taken note and is working harder on a cure.

Being the only foundation in the world dedicated to lymphangiomatosis and Gorham’s disease, the outing’s growth has helped reach out to patients across the globe.

“With diseases this rare and mysterious, proper diagnoses can be difficult and take years. That’s why in addition to the funds the outing raises, awareness is another goal,” said Jack Kelly, LGDA Board President whose daughter, Jana, founded the LGDA in 2007. “We want to let people know we’re here and we can help.”

DSC_0883_compressed“We’ve already made contact with patients in the area we didn’t know of last year,” said Wiesner. “Connecting patients and their families is a vital part of our mission. It’s important patients know they’re not alone.”

Wiesner would know. The 1992 graduate of Kewaskum High School in Wisconsin has battled through these diseases since he was a child. Though Scot is forced to get around in a scooter, he considers himself fortunate to be alive and able to start a fundraising event to help others who suffer from the diseases.

This year, he was joined by three other patients at the outing, breaking last year’s world record of the most people with lymphangiomatosis and Gorham’s disease to ever be in one room. Ages ranged from 3 to nearly 40.

DSC_0694_compressedLGDA founder Jana Sheets died of complications of lymphangiomatosis in February 2010, but each year a rainbow has appeared that the golfers like to say is sent from Jana to show her approval of their efforts.

Plans for next year’s golf outing, to be held at Brown Deer on Saturday, September 21, 2013, are already underway.

Donations to the LGDA are tax deductible and welcome year round.

See more photos on facebook or the Golf Outing web site.