2013 News


 

LGDA participates in 1st Rare Bone Disease Advocacy Day on Capitol Hill

The Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) is a founding member of the newly created Rare Bone Disease Advocacy Alliance, a coalition of rare bone disease organizations committed to advancing research of rare bone diseases by working directly with Congress and the Executive Branch. On September 18, 2013, advocates from ...
Read More

First Central Florida Golf Tournament – May 18, 2013

Thank You for Your Support The first ever Central Florida LGDA Golf Tournament at Stoneybrook West Golf Club was a complete success! The hot weather didn’t seem to dampen the golfers’ enthusiasm and spirit. The Golf Tournament started early with our energetic volunteers setting up and organizing the details of ...
Read More

LGDA Intercedes to find help for Child in South America

In early April 2013 the Lymphangiomatosis & Gorham's Disease Alliance (LGDA) was contacted by Dr. Mishy Lesser, a Boston-based educator, seeking assistance for a child in the Amazon jungle region of Ecuador. Dr. Lesser had just received an urgent plea for help from a former student, Ladio Dominguez, who resides in ...
Read More

LGDA @ ATS International Conference

The American Thoracic Society International Conference - Meet the Experts session in Philadelphia on Saturday, May 18, 2013, was a great success for the lymphangiomatosis and Gorham’s disease community. In attendance were 3 patients, 4 parents of patients, 2 spouses of patients, 1 friend of a patient, and 3 physicians ...
Read More

On your marks, get set, go . . .

200 people Run Balmoral to raise money for The Alfie Milne Lymphangiomatosis Trust   On April 27, 2013, Mum Tracy, Dad Mark and Big Brother Lewis put their trainers back on to run for Alfie’s Trust.  ...
Read More

ATS-PAR Meet the Expert 2013 – Philadelphia

As a member of the American Thoracic Society Public Advisory Roundtable, the Lymphangiomatosis & Gorham's Disease Alliance (LGDA) is pleased to invite you to participate in the Patient-and-Family Forum, Saturday, May 18, 2013, during the International Conference of the American Thoracic Society at the Loews Philadelphia Hotel in Pennsylvania. For the ...
Read More
Loading...

 
Back to Latest News