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johns_hopkins_medicine

February 13, 2013 admin

Return to Rare Bone Disease Research Summit – Johns Hopkins University

Raising Awareness

Twenty years of never knowing another person with my disease inspired me to help others. Jana Sheets, LGDA Founder, USA

Patient Support

LGDA is here to help you find resources and to provide support to patients and families living with Gorham-Stout disease (GSD) & lymphangiomatosis/generalized lymphatic anomaly (GLA).

Click Here to Email Us

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